Patience

The black hole says to her, "My scars tell my story but they are mute & you are blind."

Maya Miro Johnson
b. 2001, USA
Co-Creator, Composer, Director

Scene One: Waiting Room

Interlude: Strange Father!

Christina af Klinteberg Herresthal
b. 1997, Norway/Sweden
Co-Creator, Mezzo-Soprano, Title Role

Setting:

a coma, a memory, anesthesia, a hospital bed, the grave

Libretto:

composite of primary source medical texts, collages of poems from multiple authors, and original text

Characters:

The Patient (mezzo/treble)

Doctor One (mezzo)

Doctor Two (baritone)

Body/Friend (dancer/performer)

Chorus of Alternate Outcomes

Ensemble:

Oboe

Bass Clarinet

Percussion

Double Bass

Moog Modular Synthesizer

Korg Minilogue Polyphonic Synthesizer

Live Acoustic Feedback Instrument

Fixed Media

Duration:

70’ One Act

Set Design:

projections, live video feed, pre-recorded film/media, and center stage “altar" to Saints (authors of text on illness and pain in the female human body whom The Patient canonizes in her mind for comfort, faith, and companionship in the face of the void)

projections and altar are composites of symbolic disability imagery (sunflowers, zebra stripes, disability pride flag colors) and references to surreal visual aesthetics of Frida Kahlo and Yayoi Kusama (polka dots, painting references like wounded deer, Greek columns, monkey, etc.) as well as set pieces designed after hospital beds, MRI machines, Iron Lungs, surgical tables, etc.

lighting alternately dim and grey and stark and unflattering, like operating room or hospital hallway

Plot:

The Patient exists somewhere between life and death, a victim of fatal medical misdiagnosis. The chorus of alternate outcomes reminds her of points in her odyssey at which choices were made that changed her life and the multiple realities that diverged from them.

She recalls with hazy imprecision the steps in her descent:

Prelude: the sudden inexplicable detachment of the body from the self (betrayal)

  1. filling out forms in a waiting room (denial)

  2. two doctor appointments, one in which she was deemed too cogent to be sick and another in which she was deemed too upset to be reliable (anger)

  3. a hallucination of a communion with a black hole while in a full-body MRI scan (bargaining)

  4. a failed surgery with vague implications of malpractice (depression)

  5. the self winning the last battle against the body (resignation and suicide attempt)

  6. connecting with another sufferer, who may or may not be a real person, through an internet forum and calling her Friend (acceptance)

    Interludes between each scene disrupt the pain of memory with abstract prayers to Patron Saints of the Ill, Lame, and Mad (medieval style veneration of texts by writers on pain such as Edith Södergran, Audre Lorde, Hildegard von Bingen, more to be researched, etc.).

SYNOPSIS

Scene Two: Self-Portrait with White Coat

Interlude: [sic]

Scene Three: You May Resume Breathing

Prayers

Solo Voice, text by Södergran, Kahlo, Kusama, Lorde…

Previous Work Samples:

What’s Opera, Doc?

Opera and theater are often inherently non-profit, labor-of-love enterprises — and that is true of Patience. We seek to create sustainable social change instead of revenue. Fortunately, our production is inexpensive due to its musically and artistically innovative approach to modular form! Each scene is scored for radically different groups of performers, pre-recorded, and then played as live electronics and multimedia films that cut across the stage as set design and with which our one onstage performer, Christina, is communicating, but fundamentally separated. This also allows the opera to be less expensive, light, and easy to travel. Formally innovative and experimental, but with an emotional core, the project transforms what opera can be and how it can serve a social purpose.

What’s Next?

Completion and staging at Brown University by spring 2028. Pitching in medical, innovation, and theater arts spaces. Performing at medical conferences. Possible non-profit startup incorporation. We will spend the next 2 years exploring all these avenues while striving to create the best artistic result possible.

design concepts

Image credit:

"Yayoi Kusama's Yellow Pumpkin" by thaths is licensed under CC BY-NC 2.0.

"A CGI Sketch of Yayoi Kusama's Infinity Mirrored Room" by Dominic's pics is licensed under CC BY 2.0.

"Yayoi Kusama. Editions/Artists' Books (E/AB) Fair" by j-No is licensed under CC BY-NC-ND 2.0.

"dot yellow world" by Stig Nygaard is licensed under CC BY 2.0.

"Identify the Artist (577)" by rverc is licensed under CC BY-NC-ND 2.0.

"Yayoi Kusama Museum" by jpellgen (@1179_jp) is licensed under CC BY-NC-ND 2.0.

"Yayoi Kusama" by alanosaur is licensed under CC BY-NC-SA 2.0.

"Yayoi Kusama" by rocor is licensed under CC BY-NC 2.0.

"Máscara" by Javier Castanon is licensed under CC BY-NC-ND 2.0.

"Image 3" by libbyrosof is licensed under CC BY 2.0.

Frida Kahlo, Henry Ford Hospital, 1932. Oil on metal, 12-13/16 x 15-13/16 inches.Collection Museo Dolores Olmedo Patiño, Mexico City © 2007 Banco de México Diego Rivera & Frida Kahlo Museums Trust. Av. Cinco de Mayo No. 2, Col. Centro, Del. Cuauhtémoc 06059, México, D.F.

"Frida Kahlo and her pet fawn, Granizo." by ♭ Nocturne ♬ ♪ ♩ is licensed under CC BY-NC-SA 2.0.

"Frida Kahlo, 'Las Dos Fridas (The Two Fridas),' 1939" by euthman is licensed under CC BY 2.0.

Frida Kahlo, The Two Fridas (Las dos Fridas), 1939, oil on canvas, 67-11/16 x 67-11/16 inches (Museo de Arte Moderno, Mexico City)

"audre-lorde" by 350VT is licensed under CC BY-NC-SA 2.0.

"100elles 20190818 Rue Audre LORDE - Rue ROUSSEAU" by Suzy1919 is licensed under CC BY-SA 4.0.

"'WE ARE POWERFUL BECAUSE WE HAVE SURVIVED.' AUDRE LORDE" by UNARMED CIVILIAN is licensed under CC BY-NC-SA 2.0.

"Audre Lorde" by K. Kendall is licensed under CC BY 2.0.

"Audre Lorde" by Thomas Hawk is licensed under CC BY-NC 2.0.

"Firland Tuberculosis Hospital beds, 1927" by Seattle Municipal Archives is licensed under CC BY 2.0.

Edith Södergran portraits Public Domain